As people know I go and see my Nan regularly. She is the senior spoonie in our family, along with me and mum we make a right trio. It has been really hard to get to a point where I understand that Nan has her issues too, shes not going to be with us forever […]
Onceuponafibrotime was born out of ignorance and frustration. People having a real lack of understanding of fibro when I have had to learn about fibro since before i knew how to spell the word. I naively expected the same of everyone else. The name. Well, I was sat there on the Monday evening drafting ideas, […]
Today (August 7th 2016) marks 1 years since I got my Fibro and hypermobility diagnosis. 1 year has flown by. It has been full of appointments, twitter chats, starting my blog, learning to drive (again), losing friends who don’t understand chronic illness and gaining friends who do understand how i feel which is the best […]
Well sorry guys, last month I was totally rubbish at this! I even have a blog post draft entitled July goals with nothing more than “My goals for this month are…” so you know the thought was there. Looking back over july I think the reason I was pretty rubbish at getting motivated was because […]
Note: This is how fibro has an impact on my life. If you still enjoy these things then I’m kind of envious. However I am not one of those people who will turn round and say you can’t possibly have Fibro, you don’t have the same symptoms as me. The list of symptoms of fibro […]
Thursday 23rd June, my friend and I headed off for a day at the seaside. It had been a few months since I had seen her, and it had been planned for a while so I had been really looking forward to it! Before we set off in the morning I made sure I […]
I get asked both in real life and online how can I have fibromyalgia and still go to the gym. Well firstly I am not going to the gym and doing 100kg bench presses, forcing my body to do things it can’t manage. The workout programme has been put together by someone who understands the […]
Wow, where has the months gone… I can’t believe that I am writing my June goals post. The last month has flown by, it hasn’t been the best of months as I have felt pretty low most of the month and I haven’t been sleeping great and that always has a knock on effect. So […]
If you had told me 12 months ago I would not only have a fibromyalgia diagnosis but I would also be writing a blog about it, I would have laughed at you. No-one would ever believe me; no-one would ever believe my pain. So as I left for the hospital on August 7th 2015 I […]
*Ok so I know I am posting this in the day but I actually typed this up on my phone last night when I was in bed in terrible pain. Laying here like this, getting uncomfortable, get frustrated it just makes me think what is the point. It is so frustrating that no-body ever sees […]