As people know I go and see my Nan regularly. She is the senior spoonie in our family, along with me and mum we make a right trio. It has been really hard to get to a point where I understand that Nan has her issues too, shes not going to be with us forever so I want to do my best to help her in the now. These photos were taken a couple of months ago and if I am entirely honest I started this blog post at the beginning of June and it has been sat in my drafts since then. But now feels like the right time…
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My blog turns 1!
Onceuponafibrotime was born out of ignorance and frustration. People having a real lack of understanding of fibro when I have had to learn about fibro since before i knew how to spell the word. I naively expected the same of everyone else. The name. Well, I was sat there on the Monday evening drafting ideas, I just kept thinking how life with Fibro is anything but life like a fairy tale. I just kept saying to myself once upon a fibro time life is anything but good and so i had this desire to document it, letting out the feelings I had kept bottled up feelings that I had fibro…
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One year since my diagnosis…
Today (August 7th 2016) marks 1 years since I got my Fibro and hypermobility diagnosis. 1 year has flown by. It has been full of appointments, twitter chats, starting my blog, learning to drive (again), losing friends who don’t understand chronic illness and gaining friends who do understand how i feel which is the best of it all. I just want to thank all of the people who have read the blog over the last (almost a year) few months. Your support has really helped me through tough times, the cold winter months, the hot sticky summer days where only people with fibro can really understand how yuck it can…
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August goals (And july apologies)
Well sorry guys, last month I was totally rubbish at this! I even have a blog post draft entitled July goals with nothing more than “My goals for this month are…” so you know the thought was there. Looking back over july I think the reason I was pretty rubbish at getting motivated was because I felt quite rough for most of the month. The best thing about last month was that I got myself my first ever car. A ford ka named Aggie and I love her! (Previous owners named her and the name just suits so i kept it!) I haven’t passed my test (yet) but i have…
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Thanks Fibro, things I struggle with
Note: This is how fibro has an impact on my life. If you still enjoy these things then I’m kind of envious. However I am not one of those people who will turn round and say you can’t possibly have Fibro, you don’t have the same symptoms as me. The list of symptoms of fibro are so massive that it would be impossible to be impacted by them all the time. Fight fibro and have the best life you can! Going to the cinema I saw the trailer for the new Bridget Jones film this morning and I am really looking forward to watching it but then I think in…
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Spoonie day out – Weymouth
Thursday 23rd June, my friend and I headed off for a day at the seaside. It had been a few months since I had seen her, and it had been planned for a while so I had been really looking forward to it! Before we set off in the morning I made sure I went off and voted in the referendum. I knew from the start that a day out would exhaust me and I knew that once I got home in the evening I may have felt too tired to go and vote so I made sure I did it straight away. The drive to Weymouth was about…
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Why I love the gym…
I get asked both in real life and online how can I have fibromyalgia and still go to the gym. Well firstly I am not going to the gym and doing 100kg bench presses, forcing my body to do things it can’t manage. The workout programme has been put together by someone who understands the conditions I have, along with my limitations (Although I like to believe I don’t have any) and they have given me exercises I can manage and I work at them when my body allows. I rejoined the gym under the advice of the physio at the hospital so it is not something I decided lightly.…
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June goals
Wow, where has the months gone… I can’t believe that I am writing my June goals post. The last month has flown by, it hasn’t been the best of months as I have felt pretty low most of the month and I haven’t been sleeping great and that always has a knock on effect. So lets start by going back over the May goals and see how I got on…. Medication – Last month I set myself the goal of making sure I took my middle of the day tablets every day. I think I achieved this most of the time but not all of the time. However, I do see…
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Diagnosis, the good, the bad and the ignorant.
If you had told me 12 months ago I would not only have a fibromyalgia diagnosis but I would also be writing a blog about it, I would have laughed at you. No-one would ever believe me; no-one would ever believe my pain. So as I left for the hospital on August 7th 2015 I didn’t really have any expectations as to what was going to happen but the best thing did – I got my diagnosis. I have fibromyalgia (Incase you didn’t know) Having suspected that I had Fibro I didn’t expect anything to change because it wasn’t anything new to me, however after getting a diagnosis I became…
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Terrible night…
*Ok so I know I am posting this in the day but I actually typed this up on my phone last night when I was in bed in terrible pain. Laying here like this, getting uncomfortable, get frustrated it just makes me think what is the point. It is so frustrating that no-body ever sees this side of the condition. Just because i look OK doesn’t mean I am. Right now I want to chop off my right leg, the pain going down it makes even laying on that side of my body impossible. I stand up, I sit down, I sit up, I lay down… no position is comfortable…
