A new year and 2018 is here. It is safe to say in terms of blogging in 2017 I sucked, I dont think I anticipated just how much University would use up all my time, I think a lot of it was the commute every day and the long days meant I was out of the house a lot for 12 hours, having time to eat and go back to bed to get up and do it all again. I do not regret going back to Uni in the slightest tho, my masters has been the best educational year to date. I have really enjoyed the topics we were assessed…
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Things you don’t see
I started this blog as a way to document life with Fibromyalgia and I get these weird ideas for posts at the most random of times. Like this one for instance…. Two nights ago I woke up at 4am, on top of my duvet desperate for the loo but struggling to move and the thought popped into my head “People don’t see this struggle” (Which is obvious because my double bed is all mine every night!!!!) There is two sides to me (and probably everyone else with blooming fibro) — the side we show the world vs the side we hide from the world — Even on the worst of…
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TWO YEARS SINCE MY DIAGNOSIS
Today marks two years since I officially got my Fibromyalgia diagnosis! I mean come on lets party!!!!!……… (completely joking of course). I remember a number of things about that day but not how I felt about the diagnosis. I remember; having to get the bus to bath because the trains weren’t running meaning I left RIDICULOUSLY early for my appointment because I always have to get the train/bus before the train/bus that would get you there in time… just in case! I had a pain attack in McDonald’s and literally couldn’t move for like half an hour (thank goodness for being early!) I was desperate for the loo in the…
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My friends ask me questions about Fibromyalgia
So, Friday Night (16th June) I sent out a few whatsapp messages asking my friends for questions about Fibromyalgia. I wanted them to ask me questions they don’t know the answers too as fibro is a minefield of ignorance and misunderstandings. I mean they cope with being my friend, so I wanted to see what they had to ask me. I would like to thank the friends who asked me questions! They are brilliant questions! How has Fibro shaped you as a person? It has made me a grumpy, painkiller rattling wreck on a bad day. However on a good day it’s made me determined, stubborn and unable to slow…
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To the teachers who helped shape me – Good and Bad
10 years ago I was taking my GCSE’s at school, and I have been doing a lot of thinking recently about how much has happened since then. In that time I have only had 2 years out of education and i think its since i went back to uni that I have been thinking about this more. I lack so much confidence in my academic ability and I really have been trying to think of how school was and all I can think of when thinking of school is the teachers who shaped me, the good, the bad and the comments that made me stronger. Don’t get me wrong I…
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Doubts happen, but don’t need to win.
I am coming towards the end of the teaching of the 1st semester of my masters which can only mean one thing – DEADLINES, and i’m struggling. I am not ashamed to admit that I am struggling because if this is not meant to be a walk in the park and part of me might have been more worried if i was finding it too easy because i would have been sure i was missing something! The last two months have been amazing, I have made so many amazing friends at uni and have been totally supported by them. I am not afraid to admit I am struggling, whether that…
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A Spoonie buddy is very important
The Spoonie community is by far the most understanding amazing community I have ever come across. I have many spoonies friends, people with fibro, people with other conditions just people who understand how chronic illness just sucks. However I have one spoonie friend who I can literally just message “Pain sucks” “Noise arghhh” “I wish people would stop eating so loudly” “Sleep… please let me sleep” “Why do people think my CHRONIC illness will disappear if i take a painkiller” And they just understand it! Equally I can also message them and say “I managed 5km at the gym today” “I haven’t taken many painkillers today and I am coping”…
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Using disabled parking spaces…
OMG YOU ARE TOO YOUNG OMG YOU CAN WALK YOU DONT NEED THEM OMG YOU DONT LOOK LIKE YOU HAVE ANYTHING WRONG WITH YOU, YOU MUST BE FAKING…. My mum has a blue badge and we park in the disabled parking spaces. I get sick and tired of the amount of looks and stares we get for being parked in them. Ok so the comments above are not what people have said to us BUT i can see them saying it in their heads, you know you just know when people are looking down their noses at you! I fully believe that the ignorance surrounding invisible illnesses really helps fuel…
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I turn 26 – (review of goals from last year)
So Wednesday is my 26th birthday and last year before I turned 25 I set myself a number of goals to achieve in the year. The goals i set myself were as follow; Pass my driving test Buy a car Start my masters Hit my target weight Keep blogging (obviously!) Well if you have been following my twitter you will know that some of those goals have been smashed! I have passed my driving test and I have bought a car and if you had told me 12 months ago that would be the case I would have nervously laughed, I couldn’t even book my theory test!! Now I just…
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10 facts about me not many people know
10 Facts about me not many people know! Despite being a massive steps fan my favourite song is actually Right in front of you – Celine Dion. Although I am known as a big doctor who fan when it returned in 2005 I actually walked up the stairs whilst the rest of the family watched saying “I’m not watching this load of rubbish” – Oh how things changed QUICKLY! When I was 15 probably until I was 19 I made doctor who fan videos and put them on youtube under the name drwhonerd. I used it as a coping mechanism when I was stressed, it was my way of getting…