Today marks two years since I officially got my Fibromyalgia diagnosis! I mean come on lets party!!!!!……… (completely joking of course). I remember a number of things about that day but not how I felt about the diagnosis. I remember; having to get the bus to bath because the trains weren’t running meaning I left […]
So, Friday Night (16th June) I sent out a few whatsapp messages asking my friends for questions about Fibromyalgia, like to ask me questions they don’t know the answers too. I mean they cope with being my friend ha-ha, so I would like to see what they had to ask me. I would like to […]
10 years ago I was taking my GCSE’s at school, and I have been doing a lot of thinking recently about how much has happened since then. In that time I have only had 2 years out of education and i think its since i went back to uni that I have been thinking about […]
I am coming towards the end of the teaching of the 1st semester of my masters which can only mean one thing – DEADLINES, and i’m struggling. I am not ashamed to admit that I am struggling because if this is not meant to be a walk in the park and part of me might […]
The Spoonie community is by far the most understanding amazing community I have ever come across. I have many spoonies friends, people with fibro, people with other conditions just people who understand how chronic illness just sucks. However I have one spoonie friend who I can literally just message “Pain sucks” “Noise arghhh” “I wish […]
OMG YOU ARE TOO YOUNG OMG YOU CAN WALK YOU DONT NEED THEM OMG YOU DONT LOOK LIKE YOU HAVE ANYTHING WRONG WITH YOU, YOU MUST BE FAKING…. My mum has a blue badge and we park in the disabled parking spaces. I get sick and tired of the amount of looks and stares we […]
So Wednesday is my 26th birthday and last year before I turned 25 I set myself a number of goals to achieve in the year. The goals i set myself were as follow; Pass my driving test Buy a car Start my masters Hit my target weight Keep blogging (obviously!) Well if you have been […]
10 Facts about me not many people know! Despite being a massive steps fan my favourite song is actually Right in front of you – Celine Dion. Although I am known as a big doctor who fan when it returned in 2005 I actually walked up the stairs whilst the rest of the family watched […]
As people know I go and see my Nan regularly. She is the senior spoonie in our family, along with me and mum we make a right trio. It has been really hard to get to a point where I understand that Nan has her issues too, shes not going to be with us forever […]
Onceuponafibrotime was born out of ignorance and frustration. People having a real lack of understanding of fibro when I have had to learn about fibro since before i knew how to spell the word. I naively expected the same of everyone else. The name. Well, I was sat there on the Monday evening drafting ideas, […]