• Dementia,  Personal

    Don’t rearrange the kitchen

    Having been a carer for over two years, I don’t think anyone can argue Nan and I have got a good routine going. This, incorporated with help from other family members means Nans current care needs are being met. Everything has its place, certain things happen on certain days and on the whole Nan is quite used to how things go. Delighted.. Imagine my delight last week when I find that a “friend” of Nans who visits occasionally took it upon herself to rearrange items within Nans kitchen. The thing is, it wasn’t even anything remotely helpful. For example (and not limited too) She rearranged the tea, sugar and coffee…

  • Awareness,  Dementia,  Family,  Personal

    Its our dementia world.

    Caring for someone with dementia has made me realise there are two different worlds within this journey; The Dementia sufferers world. Their lucid real world. Dementia interacts… Occasionally these worlds interact with one another and these are the good, simple and fairly easy days. Then there are the days where the only world that nans knows is the dementia world and this can be difficult and frustrating on my part. I don’t mean for it to be. However,  repeating myself 20 times in the space of an hour without losing my rag takes a lot of patience building and has actually been developed through lots of practise. “What is for…

  • Anxiety,  Personal,  University

    I’m back, Masters complete – what is next?

    Hello folks, It has been quite a while since I last updated the blog. Not too much has changed however, I have FINISHED my masters! 6 months late, I deferred my dissertation and it was the best decision I made. It gave me the summer months to really focus and my final dissertation submission is something I am indeed very proud of. Regardless of the result when I get it, I’ll still be proud because I know that the piece of work was the best I could have done) Now, it time to build (pun intended) my future. I am currently waiting for my dissertation results, as well as waiting…

  • Uncategorized

    Dementia carer, me and my thoughts.

    Nan and I… If you had seen the relationship my nan and I had about 5/6 years ago it would be a surprise.  You would find it hard to believe that we’d end up the two peas in the pod we are now. This is obviously minus myself not having dementia. Nan favoured the grandsons which was fine, and I was the only granddaughter. For many years I was probably the wicked witch from the west and couldn’t do a thing right. Now aside from the odd time a tantrum is occurring and I can’t do a thing right I am the beez kneez! Becoming a carer of someone with…

  • Awareness,  Fibromyalgia

    5 Fibromyalgia symptoms people find hard to grasp

    With Fibromyalgia there are many symptoms that pretty much means anything can be considered a symptom…..in some cases by health care professionals. Usually when you are  trying to advocate for yourself, trying to prove that it is something other than fibromyalgia. Below is a list of 5 symptoms that for non-fibro sufferers would be hard to grasp, but really are real. Extreme sensitivity Imagine a pat on the back from a friend or someone knocking into you at the supermarket causing you A LOT of pain. It is a real symptom of fibro, being sensitive to the slightest of touch. Aside from the fact that it is painful, it can also appear you…

  • Awareness,  Fibromyalgia

    Ten years between diagnosis – Differences

    My mum and I have both got a Fibromyalgia diagnosis, which you can imagine makes life a barrel of laughs at home. We got diagnosed 10 years apart and (we are pretty sure…) it was by the same rheumatologist. Aside from that their were some differences, specifically the length of time it took to get a diagnosis from the hospital. 2005 – Mum Mum suffered with her symptoms for a long time and kept going back and forth to the hospital. This was not only discussing her arthritis symptoms but also discussing these new symptoms she was suffering with. She felt like she was getting no-where. She was getting really…

  • Anxiety,  Interests,  Personal,  Spoonies

    My 2018 plans and beyond….WHAT IS NEXT?

    A new year and 2018 is here. It is safe to say in terms of blogging in 2017 I sucked, I dont think I anticipated just how much University would use up all my time, I think a lot of it was the commute every day and the long days meant I was out of the house a lot for 12 hours, having time to eat and go back to bed to get up and do it all again. I do not regret going back to Uni in the slightest tho, my masters has been the best educational year to date. I have really enjoyed the topics we were assessed…

  • Personal

    Even I can PARTY ON THE DANCEFLOOR occasionally

    If you know me well, you know that STEPS have been my favourite band since I was 7, I saw them 5 times first time round and have fabulous memories of childhood…. including one time security let me and my brother walk down to the front and H & Claire waved at us both! When they reformed in 2011, it was the perfect 21st birthday present. 2012 was the best, I saw them in Birmingham, was front row at Westonbirt and met them at their album signing just over 5 years ago! So imagine my excitement on January 1st this year waking up to see videos and pictures of them…

  • Anxiety,  Personal

    My mental health will always be a battle, but thats OK

    Living with chronic pain is not fun, but there is medication that can help take the edge off. Living with anxiety is not fun, but there is medication that can help that and my mental  health has benefited. Memories What neither of the medications can do is change the way you think about the things that have happened in the past. Whilst I try my best not to dwell on the things that have occurred sometimes the feeling becomes overwhelming and I can’t stop myself. It almost feels like I’ve hopped in a Tardis and gone right back to the split second where I felt the pain or sadness. I…

  • Awareness,  Fibromyalgia,  Ignorance,  Spoonies

    Things you don’t see

    I started this blog as a way to document life with Fibromyalgia and I get these weird ideas for posts at the most random of times. Like this one for instance…. Two nights ago I woke up at 4am, on top of my duvet desperate for the loo but struggling to move and the thought popped into my head “People don’t see this struggle” (Which is obvious because my double bed is all mine every night!!!!) There is two sides to me (and probably everyone else with blooming fibro) — the side we show the world vs the side we hide from the world — Even on the worst of…