Fibro sucks, and when I was tying my shoelaces it hurt… and that is when I thought of a number of different things about this condition that just annoy me so much.
- Bending over to tie my shoelaces hurts a lot
- A stranger tapping you on the arm can feel as if you’ve been stabbed you are that tender to touch.
- Good days are 100% followed by bad days and there is nothing you can do about it.
- No amount of sleep could ever solve the fatigue
- The pain makes no sense. Your foot can hurt one minute, the tip of your little finger the next..where is the sense in that?.
- You can’t see it. Invisible illnesses = extreme ignorance
- Having to repeatedly justify your need for painkillers because…no-one can see your pain
- Hot flushes – One minute I can be freezing, the next I am sweating and looking extremely unattractive
- And then worse to number 8…people then tell me I am too young for hot flushes! Go away!
- Memory… I almost forgot to write this one. Having a bad memory is very tiring! You are always worrying you’ve forgotten something!
- Restless legs, enough said.
- Being sensitive to noises, everything feels ten times louder than it actually is and it feels as if the noise is going through you.
- It being so much harder to think – Ok so I realise that makes no sense. I left that exactly as I wrote it on my notes because i think it proves my point. I literally can’t think straight most of the time so forming sentences is like well, hard.
- The uncertainty of the condition, I mean I really don’t know how I am going to feel tomorrow so it makes making plans ahead hard.
- Being told I am too young to be in pain, I’m not, enough said.
- I can’t exercise like i used too and I love the gym. I do what I can though.
- Medication increases my appetite and I reach for the biscuits
- Being in pain makes me feel down and I reach for the biscuits
(Ok I can’t strictly blame those two on fibro… but it plays a part)
- Managing the condition is as hard as living with it. Pacing yourself is really hard to learn.
- Accepting the condition is life long is really hard to get my head round. Before my diagnosis I always hoped one day I would wake up to no pain but diagnosis = never going to happen!
- You can easily put pain down to fibro…and it not be fibro. I have de quervain’s tenosynovitis and it has been hard to convince people its not just my fibro. However I have now found a doctor who believes my pain is different and now it can be treated but you have to learn what is fibro and what is not!
- The anxiety and depression of the chronic pain can make life very lonely. I am very up and down, but I am learning to manage it.
- Having fibro makes getting “normal peoples illnesses” even harder. A normal cold or cough will always feel like full blown flu. No in between.
- You always have to be prepared for any symptom because it can come at anytime. In my bag I always have something for pain, a bad case of fatigue, supports for my wrists. I am always prepared, I can’t leave the house without my survival kit. I talked about my survival kit in a previous post. You can read it here
- Your whole body feels tight and tense, like you need every muscle stretched but no amount of stretching would change how you feel.
Well, I hate Fibro. But I love the person I am whilst living with it. Starting this blog has changed everything for me, got me in contact with so many amazing people so I would like to thank you if you have read my 25 point ramble! Must appreciated. Remember to follow me on twitter and let me know what you think 🙂